I co-PIed on grants with Chanita Hughes and Tim Rebbeck on various projects at Penn that found some of health disparities in breast and prostate cancer were due to persons of color not getting appropriate follow up care to screening, especially for cancers that were very aggeressive in their development.
Even today, 97% of women with hereditary risk of cancer do not know their risk status.
Your UK readers might be interested in The UK Hereditary Breast Cancer Helpline. Disclosure: I am an unpaid Advisor for Psychosocial Aspecte of Genetic Testing and International Relations. But I have also done some seminal work on psychological aspects of genetic testing in the US. https://jimcoyneakacoyneoftherealm.substack.com/p/breast-of-friends-the-mother-daughter